A Lesson from Uncle Mikey

A good friend of mine recently attended the funeral of a well-beloved uncle, an uncle who had Down syndrome, Uncle Mikey. The pastor conducting the service took the opportunity to speak about the sanctity of human life—of all human life. He mentioned that some studies, such as one done by Boston Children’s Hospital, place the percentage of children with Down syndrome who are aborted at 90%.

With tests now available that will allow pregnant women to easily and inexpensively determine if their baby has Down syndrome, this number may rise even higher. There is also pressure from many in the scientific community. One high-profile scientist calls the decision to abort a baby with Down syndrome the “ethical choice.”

Yet, the pastor said, other studies done by Children’s Hospital Boston to measure the effects of having a child or sibling with Down syndrome tell a very different story.

-Among 2,044 parents or guardians surveyed, 79 percent reported their outlook on life was more positive because of their child with Down syndrome.

-Among siblings ages 12 and older, 97 percent expressed feelings of pride about their brother or sister with Down syndrome and 88 percent were convinced they were better people because of their sibling with Down syndrome.

The pastor stopped at this point and told his audience. “The last statistic is the most telling: Among adults with Down syndrome, 99% responded they were happy with their lives, 97% liked who they are, and 96% liked how they looked.”

The pastor looked out at his audience. “If I polled you, how many of you would be able to respond that way?”

He went on to talk about Uncle Mikey’s faith. “Can a person with Down syndrome have faith?” he asked. He talked about Mikey’s favorite songs, which included John Denver’s “Take Me Home” but also the hymns “The Old Rugged Cross” and “I Come to the Garden Alone,” which his mother often played for him.

“But his most favorite, the song Mikey sang most often, was ‘Jesus Loves Me.’ He would tell people, ‘Jesus loves me. He loves me.’ I think that’s a pretty incredible testimony that Mikey knew what was most important.”

When my friend told me about this funeral, tears welled up in my eyes. My faith so often gets muddied with my own performance, my own efforts to “earn” God’s approval. Mikey wasn’t hampered by this silly idea. He believed he was fully loved by Jesus, and he lived in that truth.

Jesus loves me, this I know, for the Bible tells me so.

Little ones to Him belong. They are weak, but He is strong.

Yes, Jesus loves me.

Thank you, Uncle Mikey.

NOTE: My friend wasn’t able to remember the exact statistics the pastor said, but I did a little research and may have found the exact sources he used. One was an article at Live Action News; the other was at NBC News. The statistics in italics in the post above are drawn directly from the NBC article.

NOTE: This post reminds me of a picture book written by one of my nieces about the experience of being a sister to a brother with profound Autism. Please read Grace’s story “The Family That I Love.”

The Exultation of an Easter life

This is PJ (my youngest) exulting in the bubble pool at the Birmingham, AL, zoo last week!

This is PJ (my youngest) exulting in the foam bubble pool at the Birmingham, AL, zoo last week!

“Through Him also we have [our] access (entrance, introduction) by faith into this grace (state of God’s favor) in which we [firmly and safely] stand. And let us rejoice and exult in our hope of experiencing and enjoying the glory of God.” Romans 5:2 AMP (emphasis mine)

Here are some synonyms I found for “rejoicing”: elation, delight, jubilation, exuberance, celebration, revelry, merrymaking, euphoria.

This past Sunday we celebrated the Resurrection of Christ. In my church, we sang, we clapped, we rang bells, we danced. Many joined hands and skipped up and down the aisles. It was wonderful.

And it shouldn’t be a once-a-year event.

Our senior pastor often reminds us that every Sunday is a celebration of the Resurrection. Each and every one.

And while we often may arrive at church needing encouragement, needing prayer, needing to weep and confess and be healed…

we ALSO need to rejoice, to engage in elation, delight, jubilation, and exuberance.

It’s a necessity for our souls. It’s a reminder that the troubles and sorrows of this life will not last forever.

This past Sunday, I grinned from ear to ear as I sang “Oh happy day/o happy day/when you washed my sin away” and watched the children—who often lead us into joyous abandon—skip down the aisles, tugging adults along with them. My mouth stretched wider (if possible) as I saw a woman in a motorized wheelchair join their line. She zoomed (carefully, of course) around the corners, small children bouncing behind her. Her joy was infectious.

It was a foretaste of heaven, when we will rejoice in the glory of God.

Except she won’t be in a wheelchair there.

After the service, one of my children whispered to me, “Mom, I wish I’d joined the other kids in skipping through the aisles.”

“Why didn’t you?” I asked.

“I don’t know. A little embarrassed, maybe?”

“Do you regret it now?”

The child nodded.

pj bubbles 3“Whenever you’re faced with something like that, you need to think ahead. Ask yourself, ‘Will I regret it if I don’t do this?’ If the answer is yes, do it.”

Some of us rejoice more quietly than others. That’s okay. We’re not all dancers. But we still NEED to rejoice fully, without embarrassment. Our souls require rejoicing like our bodies require water. We must join with other believers in this foretaste of heaven, in our understanding that the awful-beautiful sacrifice of our God for us has set us free to love and enjoy Him, to love and enjoy others. We must let our voices belt out, no matter how out of tune they are. We must sing of our redemption.

In public, here on earth, I may never dance like David—or like my insanely rhythmic youngest child. I’m introverted—and awkward. I am, still, a product of my particular culture, my particular upbringing.

But I can rejoice with my full voice, with my whole heart, with the brothers and sisters surrounding me. I can spread my arms high and wide. I can kneel. I can cry. I can clap. I can tap my toes and shuffle my hips in the only dancing I know how to do.

Let’s celebrate Easter again—

Every Sunday!

The Good Friday “ending”

We traveled to my growing-up state (Alabama) for the first part of spring break, and spring has sprung there! I took this while on a walk in the woods.

We traveled to my growing-up state (Alabama) for the first part of spring break, and spring has sprung there! I took this while on a walk in the woods.

I recently participated in a journal-writing session. “Write about an ending,” the instructor told us, “whatever ending comes to mind. Don’t hold back, don’t erase or scribble out, just write.”

I wrote about a relationship I would like to end—in order to start it anew, with no expectations other than authenticity. I was not surprised by the pain I felt as I wrote, but I was startled by the hope that edged its way in as I dreamed about a new beginning for this relationship. I thought I’d given up on it.

After the instructor announced, “Time’s up!” she asked if any wanted to share. Several brave writers did, and my heart broke for the pain they revealed. Suicide, divorce, death of an infant child… We felt weighed down by the sorrow of it all and yet freed to share our own hurt. After each person read, a moment of silence hung. Those near the reader often reached out and touched a shoulder, a hand. Others pushed the tissue box down the long table. Some looked directly at the reader, conveying sympathy with their eyes; others bowed heads in prayer. Often the next person who volunteered sat next to the one who’d just read, as if to say, “I share your pain. Mine may look different, but I’ve known an ending that brought loss, too.”

I’ve thought off-and-on about that journal writing session, sometimes praying for the relationship I wrote about, sometimes praying for one or another of my fellow writers. It’s what came to mind this morning when I sat down at my computer and thought about this Good Friday post. And though I soon had a focus, the actual writing of it was choppy, interrupted by my children (home on spring break), meal prep, and a visit to church.

I went to church for the Stations of the Cross: fourteen stations, fourteen crosses. We walked from one to another of them, following the figurative path Christ took, beginning at the garden and walking then to betrayal, condemnation, denial and desertion, scourging, the bearing of the cross, the crucifixion, encounter with the thief, care of the Virgin Mary, death, and entombment.

When we finished, my mother-in-law, who’d walked with me, said, “I kept thinking about how He knew what was next, how He knew what was at the end of it, yet He kept going.”

As I came home and continued writing this post, the stations and the journal writing connected. I realized Christ went purposely toward His Good Friday ending so we could have a beginning, so we could have life (I Thessalonians 5:10).

So that one day, that life—that Easter life—could be fully realized.

John was given a vision of that Easter life. He shared it with us in Revelation:

“’Look, God’s home is now among his people! He will live with them, and they will be his people. God himself will be with them. He will wipe every tear from their eyes, and there will be no more death or sorrow or crying or pain. All these things are gone forever.’ And the one sitting on the throne said, ‘Look, I am making everything new!’ And he also said, ‘It is finished! I am the Alpha and the Omega—the Beginning and the End.’  (taken from Revelation 21:4-6) 

Christ is the End of all sad, bitter endings.

He is the Beginning of all that is new.

And His Beginning will have no end.

Joy

window ScotlandThough I want joy—unceasing,

I experience only moments of it

Much between is grit-my-teeth “showing up.”

None of it is horrible;

I can always make the comparison—

To parents of children with cancer

To those suffering persecution or

being abused

To orphans, single moms, trafficking victims,

Others who have lost loved ones…

The juxtaposition brings guilt,

Which coils in my gut,

A python heavy, growing heavier.

Ach, guilt is no answer.

Joy requires realization,

That though life is often cruel because of heartbreak,

It more often is simply hard because of paradox:

who we are is not who we want to be,

the grand beauty we dream of

is not actualized in the day–to-day—

and the movie screen is an insufficient substitute.

If we settle, give up the longing, and live half-lives,

No joy.

But when we plumb beyond the temporal shallows,

Shoving past the “too weak” desires

To the eternal depths beneath,

We discover Joy has a Name,

A Face, a Person—

Whom we are invited to Know.

Inspired in part by C.S. Lewis’ opening words in “The Weight of Glory”:

If we consider the unblushing promises of reward and the staggering nature of the rewards promised in the Gospels, it would seem that Our Lord finds our desires not too strong, but too weak. We are half-hearted creatures, fooling about with drink and sex and ambition when infinite joy is offered us, like an ignorant child who wants to go on making mud pies in a slum because he cannot imagine what is meant by the offer of a holiday at the sea. We are far too easily pleased. (26)

Check out “End the NOW”

My friend (and former boss) Karin Swihart has a great passion for the neglect of women (NOW) worldwide and blogs on that topic. I just wrote a guest post for her blog and it’s up today. Follow this link to read it.

I also suggest you check out this link to her blog to read her post titled “50 Shades of Something.” Karin hasn’t read the book or seen the movie but she provides summary of an excellent post written by a woman who did–and also a link to the complete post, which is chock-full of wisdom and a lot of humor.

Finally, I suggest you follow this link to End the NOW’s home page so you can scroll down and explore the whole site. It has lots of great posts.

Confessional Living: beneath the symptoms

mads 11th bday cake

This has NOTHING to do with this post but is a pic of Maddie blowing out the candles on the birthday cake made for her by her older sister, Emily.

In the last “Confessional Living” post, I wrote about the joy that comes through confession.

I suggested it is possible for this joy to be a constant state if we live in continual recognition/confession of sin–Martin Luther’s “life of repentance.” To do this, though, we must understand the concept of “sin” more deeply–beyond its obvious symptoms to its core, where we always put “self” ahead of God and/or others. A few weeks back I was at a morning retreat run by our church (Church of the Resurrection), and Bishop Stewart Ruch spoke about the chronic disease of sin and the different ways it reveals or presents itself in our lives. I found his list very helpful, particularly in relation to the studying/thinking I’ve done for the Confessional Living series, so I am sharing it here.

1. the disease to meet our own needs–no matter what; ahead of others’ more pressing needs; for being flattered, noticed, taken care of, pampered, etc. Stewart suggested that people struggling with this particular sin disease are often magnetic or subtly manipulative personalities; they have figured out how to get others to want to meet their needs.

2. the disease of self-deception–living as if we have no sin/not seeing our own sin. This is why it is very, very dangerous to live outside any spiritual authority. It is too easy to ignore and become blind to our own sin.

3. the disease of introspection–This is not reflection but is a constant consciousness of ourselves, of how we are presenting ourselves to others, of how others are perceiving us. A continual awareness of SELF.

4. the disease of unbelief–of doubting the truth of God’s Word, of HIM. Of doubting the Gospel. Of ALWAYS questioning/pushing off acceptance.

5. the disease of perfectionism–In this, we have an illusion of the possibility of self-goodness and being completely RIGHT. It leads to brutal self-standards and terrible judgment of both self and others. Perfectionists are exhausted themselves and tiring to be around.

6. the disease of non-acceptance–We do not accept what God has given us to do or be. We don’t embrace it and instead long for something else.

Mad's 11th bday cakeThese were very helpful for me. A friend who also attended the retreat went with me on a long walk, and we discussed the realities of these diseases in our lives. We recognized many of them! They bring theoretical sin into the nitty-gritty and allow me to see the wrong in very subtle attitudes, actions, or thoughts. When I am in a group, and I find myself slightly amending a statement or story just before I say it so that I will appear more likable/knowledgable/competent–I can see that this springs from a sin disease and needs to be brought to the Lord. When I fuss at two of my children for squabbling in a store, it allows me to see that underneath the good desire for these children to care for each other is a sliver of hurt pride at having others’ perceptions of my parenting tainted by my children’s actions.

And when I become conscious of these things, I am more in awe of Christ–who didn’t exalt Himself but instead humbled Himself to the cross, –who loved and died for us while we were still dead and rotten in our sins.

With great gratitude I remember that for our sake “God made Christ, who never sinned, to be the offering for our sin, so that we could be made right with God through Christ.”

Confessional Living: the joy of humility

The psalmist said, “When I refused to confess my sin, my body wasted away, and I groaned all day long. Day and night your hand of discipline was heavy on me. My strength evaporated like water in the summer heat.” Psalm 32:3-4 NLT
God went to great lengths to draw the psalmist into confession. The Message paraphrases the above verses like this: “When I kept it all inside, my bones turned to powder, my words became daylong groans. The pressure never let up; all the juices of my life dried up.”
Why was God so hard on him? We learn the answer to this question later in the same psalm (32) when the psalmist can no longer stand his misery. “Finally, I confessed all my sins to you and stopped trying to hide my guilt. I said to myself, ‘I will confess my rebellion to the Lord.’ And you forgave me! All my guilt is gone.”
The relief was so great the psalmist said: “Oh, what joy for those whose disobedience is forgiven, whose sin is put out of sight! Yes, what joy for those whose record the Lord has cleared of guilt, whose lives are lived in complete honesty!” The Amplified puts the second part this way: “Blessed is he who has forgiveness of his transgression continually exercised upon him, whose sin is covered.”
God knows this kind of joy results when we honestly confess and experience His beautiful forgiveness. He doesn’t want this joy to be something we only experience after committing “big” sins; He wants us to live in this kind of joy all the time. This simply isn’t possible when we think we’re “doing okay.” When we think of our sinfulness merely in terms of “big” sins and only engage in confession when we’ve “really messed up,” we become flat and joy-less. Confessional living requires that we walk daily in the light of God’s truth, allowing it to continually reveal our own selfishness, our hidden sins, and our lack of trust—those ongoing sins that are at our very core. I John 1:9 tells us, If we claim to be without sin, we deceive ourselves and the truth is not in us.”
Confessional living requires humility, and we humans don’t generally like humility. We think it will make us unsure, sad, and weak. But that’s not true. When we walk in humility with the Lord, regularly asking the Holy Spirit to convict us and taking all that is revealed to the Lord, He continually purifies and heals us, and we live strong and free and joyously in Him.
Gideon is a perfect example of this (Judges 6-8). After Gideon turned from his “big” sin of idolatry, he still struggled with doubt and fear. He could have hidden this, but instead he regularly admitted it to God. He told God he simply couldn’t do the task God had called him to. He asked for first one sign, then another, then another.
You’d think God would have gotten tired of Gideon’s lack of faith and progress.
But no.
Not once does God rebuke Gideon for being fearful or for admitting his fear. Not once does God express frustration. Instead He shows his acceptance of Gideon just as he is. He reassures him again and again. He meets him in his fear. After God has answered all Gideon’s requests, He tells him, “If you’re afraid (and I know you are), I’ve arranged yet another sign for you down in the enemy camp. You can sneak down there at night. Just stay outside their tents. You’ll hear all you need to know. Oh, and, by the way, take your servant with you if you need a partner to bolster your courage.” (my paraphrase)
Gideon doesn’t protest. He follows God’s directions–and then he worships!
Gideon’s willingness to acknowledge his own faults makes him more aware of God’s greatness.
Then he is able to accept God’s power and peace and joy and go out to do battle in the Lord’s strength.
If we [freely] admit that we have sinned and confess our sins, He is faithful and just (true to His own nature and promises) and will forgive our sins [dismiss our lawlessness] and [continuously] cleanse us from all unrighteousness [everything not in conformity to His will in purpose, thought, and action]. I John 1:9 Amplified

In the woods, walking slow–a sort-of poem

I always put disclaimers before I post my “poetry.” This is particularly true when I post one of my “poems” just after posting a piece by someone who really can write poetry. (If you haven’t read high school Tyler Jackson’s “Beloved,” please follow the link and do so.)

I am working on (or at least processing) several blog posts right now, a couple of which will be in the confessional living series, but as none of them is fully formed, I am instead sharing my creative-ish ramblings on walking in the woods, which I love to do no matter what the season, what the weather.

In the Woods, Walking Slow

Birds sound out—I imagine they are sharing the news,

The weather forecast, the society page.

One last note, and there is unusual silence,

Deep, weighty.

Perhaps even ominous.

I stop, too—the better to sense the wolf of Grimm’s dark tale—

scan the trees, then laugh at myself.

Another birdcall, and my eyes follow the sound, sliding up dark trunks

To trace the branches black against the darkening sky.

Dusk is here.

I step further,

seeing less, listening more,

hearing the Spirit’s whisper:

“I am here.”

The Holy hangs in the air around me,

In the Joy of the birds, the Mystery of the imagination, the Beauty of the branch-laced sky

God IS—Big and Real.

In the woods

I practice stillness

And know.

Odds and Ends: a recording, a verse, a suggestion

A RECORDING: If you didn’t read the last post, a poem by Wheaton Academy student Tyler Jackson, please scroll down below this post to see it (or follow the link above). The more I read her poem, the more I am influenced by it, so I made a recording of it in case any of you would rather hear it (poetry so often has a different effect when it’s listened to) or listen as you read along. Here’s the recording:

A VERSE: In my latest post in the Confessional Living series, it was implied but not actually stated that the Holy Spirit most often uses the very Word of God to make us aware of our hidden (or not so hidden) sins. Hebrews 4:12 is a oft-quoted verse about the power of Scripture. I’m putting it here in the New Living translation because it makes the verse new and fresh even to those who have quoted it since they were children. I am also including verses 13-16 because the Gospel, hallelujah, goes beyond our sin to the Savior who rescued us through His own sacrifice.

Hebrews 4:12-16 For the word of God is alive and powerful. It is sharper than the sharpest two-edged sword, cutting between soul and spirit, between joint and marrow. It exposes our innermost thoughts and desires.13 Nothing in all creation is hidden from God. Everything is naked and exposed before his eyes, and he is the one to whom we are accountable. 14 So then, since we have a great High Priest who has entered heaven, Jesus the Son of God, let us hold firmly to what we believe. 15 This High Priest of ours understands our weaknesses, for he faced all of the same testings we do, yet he did not sin. 16 So let us come boldly to the throne of our gracious God. There we will receive his mercy, and we will find grace to help us when we need it most.

*Here is Hebrews 4:12-16 in several different versions/paraphrases.

A SUGGESTION: Are you wanting to read Scripture more and allow God to use it to change you? Bible Gateway has recently added a section to its website titled “Scripture Engagement.” Here’s the first paragraph on that page: “This section of Bible Gateway, created in partnership with the Taylor University Center for Scripture Engagement, outlines a set of practical exercises and activities you can undertake to interact more meaningfully with the Bible.” I would encourage you to check it out by following the link above.