One Skin, Skeleton, Skull… (Empathy series)

My job closely connects me with the impact of the body on people’s lives. There is my actual work with persons who are seriously ill and/or in pain, and there is also the daily walking around and through an adult hospital that’s right next door to a children’s hospital. The halls and common spaces have far more than the average number of assistive walking devices, beanies and caps covering chemo-bald heads, oxygen tanks, prosthetic limbs, etc. Every day I pass parents pushing children in wheelchairs or pulling them in wagons that hold not just their child but also some kind of bulky medical device. And then there are unhoused persons, many of them with skin sores and swollen hands or feet, drawn to the safety, climate-controlled open spaces, and generally welcoming attitude of a public hospital.

One morning, as a colleague and I walked the two blocks from our office to the building where our Spiritual Care Department has its daily huddle, we passed a middle-aged woman pushing a young man (20s, maybe?) in a wheelchair. Both his feet were gone, and the skin at the base of the amputation sites was pink and puffy. Once we were past them, I said, “I’ve seen them every morning this week.”

She sighed. “That skin looks painful.”

“It’s gotten me thinking about our specific bodies and the ways they shape our lives.”

“Say more.” (What a good chaplain she is!)

“These bodies of ours determine so much of our existence and even how we become as persons. I know there are lots of factors–socioeconomics, geography, family background–but the presenting aspects of our bodies–our skin, any disabilities, any anomalies–those impact how other people look at us and see us, and then their reactions shape how we think of ourselves.”

She nodded. “And then it shapes the opportunities that are open to us–or not–and the groups that are available to us for belonging.”

“Yes,” I continued, “and all I know is the experience of my one body and its specifics, but I tend to think that my one experience gives me information and insight into other people’s embodied experiences.”

I’ve continued to think about that conversation, and I’ve done a little practice with it.

First I listed out my identities that are connected with my actual body, starting with those that are most obviously connected (*the full list of the identities I used is at the bottom of this post). And then I explored each of those a bit.

For example, I am able-bodied, with all my limbs, ten fingers & toes, normal range of motion in my joints, able to use all my sense organs (seeing, smelling, hearing) in a “normal” range. This has been true since my birth. I followed a normal timeline of crawling-toddling-walking-running and my coordination and balance were again in the normal range. I wasn’t great at sports, but I could engage in them and never be the last one chosen when the kickball captains picked their teams (what an awful practice–why did we ever think this was a good idea?).

Then I tried changing one thing that is listed in the above paragraph and imagined how that would have impacted the actual life I’ve lived. What if I’d been born with one hand that I couldn’t use “normally”? Just one. What are the things that I engaged in as a child (like knitting, swimming, cooking…) that would have been impacted by that ONE change? How would I have been seen differently by my peers–in school, in sports? What facial expressions would I have seen regularly on some people’s faces when they noticed my hand? How would that have changed how I felt about myself, how I interacted with them? What about my daily life now? What adjustments would I need to make? What would I need assistance with? How would this change how I get around my city?

ONE change–and I could be a completely different person. I could have a completely different outlook and way of relating. I could walk around seeing my world and other people from a viewpoint that I (in the body that I inhabit) can only imagine.

I have to admit that this was not a comfortable practice for me. I am very used to life within THIS skin, with this particular skeleton, skull, organs, and mind. I know only THIS lived experience. This practice forced me to imagine my life from a different experience, one embodied “bit” at a time, which made it–for me–a little more real and possible than trying to imagine myself as a poor child in a war-torn country around the world from my own.

This also helps me to understand the compounded and complicated effects of intersectionality (such as a lesbian woman who is African American who’s had Type 1 Diabetes all her life). It was a lot to think of these changes ONE identity at a time; what about holding each one and then adding another and then another!!!! I remember once participating in a training exercise in which the facilitator had our group stand in a horizontal line facing him. “Take a step forward if your parents went to college,” he said. “Take a step forward if you’ve never had a stranger call you a name related to your physical appearance.” With one statement after another, some of us moved forward. Some didn’t. At the end, the facilitator asked those of us closer to the front to turn around to face the group members behind us. (Here’s a link to an example of this exercise: https://www.eiu.edu/eiu1111/Privilege%20Walk%20Exercise-%20Transfer%20Leadership%20Institute-%20Week%204.pdf)

Empathy work is hard work–good but hard. But it’s oh, so important.

*BODY-RELATED IDENTITY LIST (this is the list I created and used for my own empathy practice)

-Gender (from “super” feminine to “super” masculine and all that’s in between as well as the level of comfort with where one lands on that spectrum)

-Skin color

-Size (tall to short, small to large)

-Visible “Ableness” of the body (arms and legs, sense organs, etc.)

-Less visible “ableness”/health of the body (diseases such as sickle cell, diabetes, heart conditions…)

-Anomalies of the body that are visible (strange head shape, facial features)

-Sexuality

The gentle power of God’s pursuit

God’s pursuit of a human is a wonder.

Yesterday, God pursued me.

He had to.

I’d woken for several mornings with a numb heart. I didn’t want to feel too much, to have my heart stretched by His great Presence. Nothing was “wrong.” I simply wanted to stay cocooned in a tight chrysalis of control and predictability. I didn’t want my days rocked by eternity. I didn’t want to see myself as part of something bigger. I wanted my cocoon to be IT, cozy and snug. Nothing else fit—and I didn’t want it to.

But here’s the rub—the truth. If I want my tight little cocoon, I have to let go of ALL the things that don’t fit, like fullness and joy and inexplicable peace. Like amazement and wonder. I can’t have “control” AND fullness of life. My chrysalis tightens, and my focus narrows, my heart squeezes, and my vision tunnels. MY to-do list magnifies and lengthens.

After only a few days of a numbed heart, I sensed this narrowing, but rather than open myself to God’s gentle knockings, I avoided. I read a book; I checked e-mails—again; I worked—past quitting time. All fine things, except when they’re used as a substitute, as anesthetic to numb myself to God’s touch.

But yesterday God used “little” things to break through my shell. Son Jake had a dentist appointment in the morning, so I had to delay emails and writing assignments. We went to the dental office and learned our appointment was delayed, so we had some extra time together—REAL time, not like the working-on-homework-together time we’ve had so much of recently.

Of course, Jake, being Jake, asked questions I couldn’t answer out of myself. I had to silently cry out for help.

Then I had an interaction with an employee at a store—a good interaction, though nothing “big”—and in it was this reminder: if I want to spread Christ’s love to others, I have to be open to it myself. I have to be a receiver FIRST and ALWAYS.

My chrysalis was cracking; bits were flaking off.

I dropped Jake off at school, and there was silence. My phone was quiet. The radio was off.

I reached to turn the radio on—and stopped. Into the stillness came this thought: If I didn’t allow God to break my cocoon, it would only get smaller, and what could fill it then? It wouldn’t have room for Him. It could only be filled with ME, with a me that would have to shrink to fit, a me that would become smaller and more self-focused by the day.

Ugh.

The last remnants of chrysalis shattered.

And my heart took a deep, deep breath.

 

Oh, Lord, help us to open our hearts to You. We know this is not a painless process. Your presence draws up deep hurts done to us and reveals our own hurtful ways. Your presence expands our hearts so we can sympathize with others. That, too, is painful. Yet with Your presence there is fullness of joy! There is LIFE. (Psalm 16:11)

Africa devos, cont.: BIG and small

Aunt Josephine (right) and Suzanne (left) spend their days taking care of babies and toddlers. It probably doesn't feel very significant many days--but it IS. Thank you, dear ladies, for your selfless, redemptive work.

Aunt Josephine (right) and Suzanne (left) spend their days taking care of babies and toddlers. It probably doesn’t feel very significant many days–but it IS. Thank you, dear ladies, for your selfless, redemptive work.

On page 101 of K from K, Katie writes this: “Every day, we have a choice. We can stay nestled in our safe comfortable places. … Or we can take a risk, do something to help someone else, make a person smile, change someone’s world.”

God has used Katie to touch the lives of many, many people. We see this as ‘bigger.’ But no less of a calling is when God calls us to meet the needs of ONE! We see this example in Scripture. The shepherd went out in search of the one lost lamb. The widow swept her house top-to-bottom looking for the one lost coin. The angels rejoice over one lost sinner who turns to God. Do you feel overwhelmed by stories like Katie’s? Do you feel like there is no way you could do something like that? Are your “dreams” smaller? Maybe you’re supposed to care for “one.” Your life—with all its moments—has been planned for YOU, with your gifts and background in mind. Lean into the God who planned not only your life but YOU—and He will lead you into your BIG “calling” one step at a time.

Questions for thought/discussion:

  1. What do you think is “big” to God? Where does “big” start?
  2. Read Matthew 25:21, 23. How does that relate?
  3. On page 181 Katie hints at the fact that often this life of hers is not easy. Sometimes she may not even feel like it’s very fulfilling. It can be very tedious and repetitive. WE see redemption written all over Katie’s story, but sometimes she may wonder if she’s doing any good. Redemption doesn’t always “feel” purposeful or good. It’s often messy. Sometimes it feels like we are spinning our wheels. Ask God for glimpses of the bigger picture, for patience and endurance to continue till you catch a glimpse. Continue in the good work. Read page 204.
  4. Could it be that every moment has something “big” in it—we just miss it b/c we’re looking through the wrong eyes? He created every moment for a purpose, not just the ones we consider “big.” How is God using you now?